{"id":56834,"date":"2024-10-25T10:01:01","date_gmt":"2024-10-25T08:01:01","guid":{"rendered":"https:\/\/www.rehagirona.com\/?p=56834"},"modified":"2024-10-25T10:01:23","modified_gmt":"2024-10-25T08:01:23","slug":"tanquem-la-bretxa-junts-al-dia-mundial-de-lespina-bifida-i-hidrocefalia","status":"publish","type":"post","link":"https:\/\/www.rehagirona.com\/ca\/dia-mundial-espina-bifida-hidrocefalia-2024\/","title":{"rendered":"“Tanquem la bretxa junts” al Dia Mundial de l’Espina B\u00edfida i Hidrocef\u00e0lia"},"content":{"rendered":"

Avui se celebra el Dia Mundial de la Espina B\u00edfida e Hidrocef\u00e0lia<\/strong><\/span><\/a> amb l’objectiu de conscienciar la poblaci\u00f3 que l’espina b\u00edfida \u00e9s una malaltia que \u00e9s relativament f\u00e0cil de prevenir.<\/p>\n

 <\/p>\n

LEMA 2024: TANQUEM LA BRETXA JUNTS<\/h2>\n

El lema d’aquest any s’enfoca a l’objectiu que es garanteixin els drets humans de les persones amb Espina B\u00edfida i Hidrocef\u00e0lia. Malauradament, actualment en el seu dia a dia s’enfronten a moltes barreres, a l’estigma, a la discriminaci\u00f3 ia la manca de conscienciaci\u00f3.<\/p>\n

 <\/p>\n

ESPINA B\u00cdFIDA<\/h2>\n

L’espina b\u00edfida \u00e9s la segona causa de discapacitat f\u00edsica a la inf\u00e0ncia, despr\u00e9s de la par\u00e0lisi cerebral. I \u00e9s una malaltia que en part es pot prevenir. Segons la Federaci\u00f3 Espanyola de Malalties Rares (FEDER), aquest trastorn est\u00e0 provocat els factors m\u00faltiples i estudis demostren que la ingesta d’\u00e0cid f\u00f2lic (una vitamina B), cada dia abans i al comen\u00e7ament de l’embar\u00e0s, disminueix el risc de defectes al tub neural.<\/p>\n

Qu\u00e8 \u00e9s l’espina b\u00edfida?<\/h3>\n

L’espina b\u00edfida \u00e9s un desenvolupament incomplet de la medul\u00b7la espinal, les meninges i\/o vertebres, que impedeixen que la columna es tanqui completament. En conseq\u00fc\u00e8ncia, la medul\u00b7la espinal i les meninges queden al descobert i aix\u00f2 fa que les seves fibres nervioses resultin afectades. Es poden localitzar a diferents nivells de la columna; no obstant aix\u00f2, \u00e9s a la regi\u00f3 lumbar i sacre on apareix amb m\u00e9s freq\u00fc\u00e8ncia.<\/p>\n

A Espanya entre 8-10 de cada 10.000 nadons vius presenta alguna malformaci\u00f3 del tub neural dels quals m\u00e9s de la meitat estan afectats per EB (segons Estudi Col\u00b7laboratiu Espanyol de Malformacions Cong\u00e8nites).<\/p>\n

Tipus d’espina b\u00edfida<\/h3>\n

Aquests s\u00f3n els diferents tipus d’espina b\u00edfida:<\/p>\n

Espina b\u00edfida oculta<\/h4>\n

Abs\u00e8ncia de tancament dels arcs vertebrals posteriors. No hi ha afectaci\u00f3 de la medul\u00b7la espinal ni de les seves estructures adjacents. Generalment passa inadvertida. T\u00e9 una afectaci\u00f3 molt lleu.<\/p>\n

Lipomeningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb protusi\u00f3 duna bossa plena de teixit lipomat\u00f3s. Pot produir seq\u00fceles neurol\u00f2giques.<\/p>\n

Meningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb distensi\u00f3 qu\u00edstica de les meninges, aquestes estan afectades, per\u00f2 la medul\u00b7la espinal es mant\u00e9 correcta. Les seq\u00fceles neurol\u00f2giques hi s\u00f3n, per\u00f2 s\u00f3n poc importants.<\/p>\n

Mielomeningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb distensi\u00f3 qu\u00edstica de les meninges i displ\u00e0sia de la medul\u00b7la. La medul\u00b7la espinal i les meninges estan malmeses. Les seq\u00fceles neurol\u00f2giques s\u00f3n importants.<\/p>\n","protected":false},"excerpt":{"rendered":"

Avui se celebra el Dia Mundial de la Espina B\u00edfida e Hidrocef\u00e0lia amb l’objectiu de conscienciar la poblaci\u00f3 que l’espina […]<\/p>\n","protected":false},"author":4,"featured_media":56833,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[6006],"tags":[3167,3166,1633],"class_list":["post-56834","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dia-internacional-ca","tag-espina-bifida-ca","tag-hidrocefalia-ca","tag-rehagirona-2-ca"],"acf":[],"yoast_head":"\n"Tanquem la bretxa junts" al Dia Mundial de l'Espina B\u00edfida<\/title>\n<meta name=\"description\" content=\"El lema d'aquest any s'enfoca a l'objectiu que es garanteixin els drets humans de les persones amb Espina B\u00edfida i Hidrocef\u00e0lia\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link 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