{"id":51728,"date":"2023-10-25T09:12:17","date_gmt":"2023-10-25T07:12:17","guid":{"rendered":"https:\/\/www.rehagirona.com\/?p=51728"},"modified":"2023-10-25T09:12:33","modified_gmt":"2023-10-25T07:12:33","slug":"accessibilitat-per-a-tothom-al-dia-mundial-de-lespina-bifida-i-hidrocefalia","status":"publish","type":"post","link":"https:\/\/www.rehagirona.com\/ca\/dia-mundial-espina-bifida-hidrocefalia-2023-ca\/","title":{"rendered":"“Accessibilitat per a tothom” al Dia Mundial de l’Espina B\u00edfida i Hidrocef\u00e0lia"},"content":{"rendered":"

Avui se celebra el Dia Mundial de la Espina B\u00edfida e Hidrocef\u00e0lia<\/strong><\/span><\/a> amb l’objectiu de conscienciar la poblaci\u00f3 que l’espina b\u00edfida \u00e9s una malaltia que \u00e9s relativament f\u00e0cil de prevenir.<\/p>\n

 <\/p>\n

LEMA 2023: ACCESSIBILITAT PER A TOTS<\/h2>\n

Garantir l’accessibilitat de les persones amb espina b\u00edfida i hidrocef\u00e0lia \u00e9s de vital import\u00e0ncia, ja que els permet participar plenament a la societat, desenvolupar el seu potencial i portar una vida plena<\/strong>. Es pot aconseguir amb entorns accessibles, assist\u00e8ncia sanit\u00e0ria adequada, serveis socials i oportunitats<\/strong>.<\/p>\n

Per aquest motiu el lema d’aquest any \u00e9s Accessibilitat per a tothom<\/strong><\/em>, per aconseguir una societat que garanteixi els drets humans dels nens i adults amb Espina B\u00edfida i Hidrocef\u00e0lia (EBH) i celebri les seves aportacions en tots els \u00e0mbits de la vida, garantint-lo temps lequitat a tots els nivells i per a tots.<\/p>\n

Quan es d\u00f3na prioritat a l’accessibilitat, es desmantellen les barreres que dificulten la inclusi\u00f3, fomentant un m\u00f3n m\u00e9s equitatiu i compassiu on totes les persones puguin prosperar i ser reconegudes per la seva inestimable contribuci\u00f3<\/strong>.<\/p>\n

L’accessibilitat i la inclusi\u00f3 s\u00f3n reptes freq\u00fcents per a les persones amb EBH. L’estigma, la discriminaci\u00f3 i la manca de conscienciaci\u00f3 creen barreres addicionals a la participaci\u00f3 plena en les oportunitats de la vida.<\/p>\n

 <\/p>\n

ESPINA B\u00cdFIDA<\/h2>\n

L’espina b\u00edfida \u00e9s la segona causa de discapacitat f\u00edsica a la inf\u00e0ncia, despr\u00e9s de la par\u00e0lisi cerebral. I \u00e9s una malaltia que en part es pot prevenir. Segons la Federaci\u00f3 Espanyola de Malalties Rares (FEDER), aquest trastorn est\u00e0 provocat els factors m\u00faltiples i estudis demostren que la ingesta d’\u00e0cid f\u00f2lic (una vitamina B), cada dia abans i al comen\u00e7ament de l’embar\u00e0s, disminueix el risc de defectes al tub neural.<\/p>\n

Qu\u00e8 \u00e9s l’espina b\u00edfida?<\/h3>\n

L’espina b\u00edfida \u00e9s un desenvolupament incomplet de la medul\u00b7la espinal, les meninges i\/o vertebres, que impedeixen que la columna es tanqui completament. En conseq\u00fc\u00e8ncia, la medul\u00b7la espinal i les meninges queden al descobert i aix\u00f2 fa que les seves fibres nervioses resultin afectades. Es poden localitzar a diferents nivells de la columna; no obstant aix\u00f2, \u00e9s a la regi\u00f3 lumbar i sacre on apareix amb m\u00e9s freq\u00fc\u00e8ncia.<\/p>\n

A Espanya entre 8-10 de cada 10.000 nadons vius presenta alguna malformaci\u00f3 del tub neural dels quals m\u00e9s de la meitat estan afectats per EB (segons Estudi Col\u00b7laboratiu Espanyol de Malformacions Cong\u00e8nites).<\/p>\n

Tipus d’espina b\u00edfida<\/h3>\n

Aquests s\u00f3n els diferents tipus d’espina b\u00edfida:<\/p>\n

Espina b\u00edfida oculta<\/h4>\n

Abs\u00e8ncia de tancament dels arcs vertebrals posteriors. No hi ha afectaci\u00f3 de la medul\u00b7la espinal ni de les seves estructures adjacents. Generalment passa inadvertida. T\u00e9 una afectaci\u00f3 molt lleu.<\/p>\n

Lipomeningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb protusi\u00f3 duna bossa plena de teixit lipomat\u00f3s. Pot produir seq\u00fceles neurol\u00f2giques.<\/p>\n

Meningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb distensi\u00f3 qu\u00edstica de les meninges, aquestes estan afectades, per\u00f2 la medul\u00b7la espinal es mant\u00e9 correcta. Les seq\u00fceles neurol\u00f2giques hi s\u00f3n, per\u00f2 s\u00f3n poc importants.<\/p>\n

Mielomeningocele<\/h4>\n

Error de fusi\u00f3 dels arcs vertebrals amb distensi\u00f3 qu\u00edstica de les meninges i displ\u00e0sia de la medul\u00b7la. La medul\u00b7la espinal i les meninges estan malmeses. Les seq\u00fceles neurol\u00f2giques s\u00f3n importants.<\/p>\n","protected":false},"excerpt":{"rendered":"

Avui se celebra el Dia Mundial de la Espina B\u00edfida e Hidrocef\u00e0lia amb l’objectiu de conscienciar la poblaci\u00f3 que l’espina […]<\/p>\n","protected":false},"author":3,"featured_media":51726,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[3596,6006],"tags":[3167,3166,1633],"class_list":["post-51728","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dia-internacional-2","category-dia-internacional-ca","tag-espina-bifida-ca","tag-hidrocefalia-ca","tag-rehagirona-2-ca"],"acf":[],"yoast_head":"\n\u201cAccessibilitat per a tothom\u201d Dia Mundial Espina B\u00edfida Hidrocef\u00e0lia<\/title>\n<meta name=\"description\" content=\"Garantir l'accessibilitat de persones amb espina b\u00edfida i hidrocef\u00e0lia \u00e9s de vital import\u00e0ncia, per participar plenament a la societat\" \/>\n<meta name=\"robots\" content=\"index, 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