{"id":41103,"date":"2021-06-21T07:15:55","date_gmt":"2021-06-21T05:15:55","guid":{"rendered":"https:\/\/rehagirona.com\/?p=41103"},"modified":"2021-06-18T11:00:13","modified_gmt":"2021-06-18T09:00:13","slug":"mes-investigacio-per-lesclerosi-lateral-amiotrofica-ela","status":"publish","type":"post","link":"https:\/\/www.rehagirona.com\/ca\/mes-investigacio-per-lesclerosi-lateral-amiotrofica-ela\/","title":{"rendered":"M\u00e9s investigaci\u00f3 per l&#8217;Esclerosi Lateral Amiotr\u00f2fica (ELA)"},"content":{"rendered":"<p>Avui se celebra el <strong>Dia Mundial d&#8217;Esclerosi Lateral Amiotr\u00f2fica (ELA)<\/strong> que, amb el prop\u00f2sit de millorar i augmentar la qualitat i l&#8217;esperan\u00e7a de vida dels pacients amb ELA, promou la investigaci\u00f3 i la conscienciaci\u00f3 sobre aquesta malaltia.<\/p>\n<h2>Qu\u00e8 \u00e9s l&#8217;ELA?<\/h2>\n<p>La malaltia <strong>afecta els m\u00fasculs del cos a poc a poc fins arribar a una par\u00e0lisi total<\/strong>, per\u00f2 no afecta la ment, que es mant\u00e9 intacta. A Espanya estan diagnosticades amb ELA al voltant d&#8217;unes <strong>4.000 persones<\/strong>. \u00c9s la tercera malaltia neurodegenerativa m\u00e9s freq\u00fcent despr\u00e9s de la dem\u00e8ncia i la malaltia de <strong>Parkinson<\/strong>.<\/p>\n<p>&nbsp;<\/p>\n<h2>Esperan\u00e7a de vida<\/h2>\n<p>Actualment \u00e9s una malaltia que <strong>no t\u00e9 cura ni disposa d&#8217;un tractament que freni el seu avan\u00e7<\/strong>.<\/p>\n<p>L&#8217;esperan\u00e7a de vida dels afectats \u00e9s al voltant dels 3 anys, ja que nom\u00e9s un 20% sobreviu 5 anys i nom\u00e9s un 10% arriba a viure 10 anys despr\u00e9s de la diagnosi.<\/p>\n<p>&nbsp;<\/p>\n<h2><a href=\"https:\/\/adelaweb.org\/\" target=\"_blank\" rel=\"noopener\"><span style=\"color: #faaf08;\">Associaci\u00f3 Espanyola d&#8217;Esclerosi Lateral Amiotr\u00f2fica (ADELA)<\/span><\/a><\/h2>\n<p><strong>Adela \u00e9s una organitzaci\u00f3 sense \u00e0nim de lucre, d&#8217;\u00e0mbit estatal, dedicada a ajudar a les persones amb ELA (Esclerosi Lateral Amiotr\u00f2fica)<\/strong> i altres malalties de la motoneurona, per millorar la seva qualitat de vida.<\/p>\n<p>La presidenta d&#8217;Adela, <strong>Adriana Guevara<\/strong>, afirma que &#8220;donades les caracter\u00edstiques de l&#8217;ELA, els pacients necessiten una atenci\u00f3 les 24 hores del dia durant els 365 dies de l&#8217;any. Normalment aquesta tasca sol cobrir-la un familiar o la seva parella, per\u00f2 al tractar-se d&#8217;un grau depend\u00e8ncia total, el malalt demanda unes cures que requereixen la pres\u00e8ncia d&#8217;un cuidador expert amb una formaci\u00f3 adequada &#8220;.<\/p>\n<p>&nbsp;<\/p>\n<h2>M\u00e9s investigaci\u00f3 per l&#8217;ELA<\/h2>\n<p><strong>Des Rehagirona ens sumem al reclam per promoure la recerca cient\u00edfica en l&#8217;ELA<\/strong>. Actualment s&#8217;estan duent a terme moltes investigacions a tot el m\u00f3n per descobrir qu\u00e8 \u00e9s el que origina l&#8217;Esclerosi Lateral Amiotr\u00f2fica i com aturar el seu avan\u00e7.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Avui se celebra el Dia Mundial d&#8217;Esclerosi Lateral Amiotr\u00f2fica (ELA) que, amb el prop\u00f2sit de millorar i augmentar la qualitat [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1044],"tags":[3120,3119,1633],"class_list":["post-41103","post","type-post","status-publish","format-standard","hentry","category-articles","tag-ela-ca","tag-esclerosi-lateral-amiotrofica","tag-rehagirona-2-ca"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>M\u00e9s 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